Sunday, February 12, 2017

When you don't think it's worth it......

Just when you think your children don't appreciate or understand the sacrifice you have made for them, your daughter writes you this note and you think...."hmmm, she gets it".

Dear Mom and Dad,

I am thankful and glad that God gave you guys to me to be my parents.  I am thankful that you sacrificed so much for me.  One of the them being all you had to go through with my C.I. and I am glad you made that decision for me and I think it was the best one you made for me.  I appreciate that you worked hard with me during my speech therapy and that you do so much for me.  I also appreciate that you taught me about God.......

Sigh,  I love this girl!

Thursday, December 1, 2016

Trying again.

Life just seems to be getting in the way of this blog.  I was pretty faithful in writing when my kids were younger, but as they have gotten older I just don't seem to have the time.
We are now a 2 cochlear implant family.  Jared, who is 15 is one year into his cochlear implant journey.  We discovered that he had lost what usable hearing he did have in his right ear, so we made the decision to get an implant for him.  Dec 4, 2015 was his surgery date.  To say he has taken off is an understatement.  He has told us he never realized how much he was missing.  He is a freshman in high school and is doing fabulous!  A's and B's on his report card and a 3.6 GPA!  He is actually talking about going to college, which he never did in middle school.  It was a long hard fought battle with our insurance company to get them to agree to pay for it.  They fought us every step of the way, saying that it was not proven that cochlear implants worked( hmmm, have they seen our daughter).  We even had his teachers writing letters to the insurance company sharing how his grades were slipping because he did not have access to sound.  I just took him on Monday to the ENT and his doctor asked if we wanted to implant his other ear.....UMMMM YES!  We are starting the process to get that done and hope to not have to fight so hard this time around.  My husband changed insurance companies and they seem to be a little bit more cochlear implant friendly.
Allison is in 8th grade and is doing fabulous as well!  A's and B's and 3.7 GPA!  I can't imagine what life would be like for her without her CI's.  She is 14 and has been doing some babysitting for people in our church.  I love that she is a normal teenage girl.  Nothing stopping her!
Jordan is 9 and is in 4th grade.  He is still schooling at home and loves it!  His favorite subjects are history and reading.  Life is good!  He has enjoyed the fact that his cousin lives down the street from us and can come play whenever he wants!
I will try to do better with my updates, but I don't make any promises.

Wednesday, May 7, 2014

I'm Back

Wow, has it been almost a year since I posted anything?  Going by the date, I guess so.  There really is no other reason for not posting except.....LIFE!  Life with 3 very active children tends to get in my way of blogging.  

Let's see if I can condense life into a few short sentences.  
Finished 5th, 4th and Kindergarten
Went on a much needed family vacation
Allison and Jordan turned 11 and 6 in Sept
6th grade camp for Jared where he broke his finger
Jared got his braces off
Winter Storms and Cold Temperatures
Jared's 13 birthday in April
IEP meetings for Jared and Allison.

I go today for Allison IEP meeting and I thought I would share some of the comments by her teachers.  These are the moments that I wish I had a crystal ball that could show me the future, back when we were just starting this amazing CI journey.  It would have saved me many sleepless nights and saved us tons of money on tissues from crying.

Academic:  Allison is mostly on grade level in all content areas, with some need in the area of spelling, math and vocabulary.  When given the Fourth Grade Ohio Achievement Assessment(OAA) in Reading, Allison received a score of 427, which is proficient.  Allison's strength area reflected is in the area of reading processing and understanding the reading process.  When given the OAA in math, Allison scored a 437, which is accelerated. Allison is reading on grade level.  When assessed using the Stanford 10 intermediate II assessment, in the area of reading comprehension, Allison received a score of 663, which is also the grade level equivalent of 7.7.  In the area of spelling, Allison received a score of 681, which is a grade equivalent of 9.9.  In the area of math, Allison scored a 661,which is a grade equivalent of 7.2  I am not writing this to brag, OK, maybe just a little bit of bragging, but this shows me that Allison is not letting her hearing loss stop her.  She never uses her hearing loss as an excuse, she pushes through. She is one tough little girl.

I go next week for Jared's IEP meeting and I am expecting the same. My children are hard workers and when given a challenge they rise to the occasion.

Tuesday, July 2, 2013

On a side note.....

The aqua bags for the cochlear implants really work!  Allison went swimming this afternoon with one on and she could hear in the pool.  The only downside......with her thick hair she had a hard time keeping it on her head.  I have sent a note to her audiologist about getting a Earbandit, hopefully that will help keep the bag in place.

Sunday, June 30, 2013

CI Mapping

I took Allison for a CI checkup and let me tell you, it was wonderful.  I use to dread these appointments, I just didn't want to hear any bad news, especially after having her right ear done and Allison not progressing with it.  There was many times when I thought we had put her through a major surgery for nothing, she would never hear with the right implant and we would have to be happy with the gain she had made with the left.  But I was wrong, very wrong!  According to the testing this past week......her right side is actually doing better then the left.

At 20 dB she is hearing 100% word recognition( right ear) vs 88% ( left ear)

She is hearing 15-25 dB across the board.

We don't have to go back for 1 year!!  Life is good, life is normal.  YAY!!!

Thursday, February 21, 2013

What Cochlear Implants Can Do

I will not write much about this video, I will let Allison speak for herself, because that is what she can do because of Cochlear Implants.

Allison's Ohio Hero Wax Museum
Allison as Alyson Stoner-Hollywood Actress.

Wednesday, February 13, 2013

I though it would get easier

Yes, that is what I thought....get Jared and Allison through the auditory oral preschool program, get them mainstreamed into regular school and life would settle down.  I knew that we would still have trips to the audiologist for hearing aide checks and mappings, I knew I would be taking them to the doctor each year for their check-ups and to the dentist every six months, but I could deal with it, that is what happens when you have kids, you become their own personal taxi service, running them here and there, braces for Jared and Allison, eye doctor appointments for Allison to deal with that pesky eye muscle that is weak because of her being born prematurely, but I can handle it after all, I am super mom!
Yesterday made me want to turn in my cape.  I took Jared to the eye doctor because at his yearly check-up they checked his eyes and told me that he had gone from 20/15 to 20/40 in one year, so I made the call, got the appointment and told Jared that he would most likely be getting glasses.  Come to find out, he does not need glasses, he needs eye therapy.  He has what is know as Convergence Excess, in plain English..his eyes cross when he is reading and as he looks up they realign and causes things to go blurry.   So add another appointment to our already busy schedule.  Don't get me wrong, I love being a mom, I know this is what I signed up for when I had these precious gifts from God, but why can't it be simple?  Why can't we have kids that only need to go to the doctor once a year or the dentist every 6 month?  But then I am reminded that God does not give us more than we can handle, so He must think I can handle this, so I will, with a happy heart and a thankful spirit for Jared, Allison and Jordan.