Wednesday, May 7, 2014

I'm Back

Wow, has it been almost a year since I posted anything?  Going by the date, I guess so.  There really is no other reason for not posting except.....LIFE!  Life with 3 very active children tends to get in my way of blogging.  

Let's see if I can condense life into a few short sentences.  
Finished 5th, 4th and Kindergarten
Went on a much needed family vacation
Allison and Jordan turned 11 and 6 in Sept
6th grade camp for Jared where he broke his finger
Jared got his braces off
Winter Storms and Cold Temperatures
Jared's 13 birthday in April
IEP meetings for Jared and Allison.

I go today for Allison IEP meeting and I thought I would share some of the comments by her teachers.  These are the moments that I wish I had a crystal ball that could show me the future, back when we were just starting this amazing CI journey.  It would have saved me many sleepless nights and saved us tons of money on tissues from crying.

Academic:  Allison is mostly on grade level in all content areas, with some need in the area of spelling, math and vocabulary.  When given the Fourth Grade Ohio Achievement Assessment(OAA) in Reading, Allison received a score of 427, which is proficient.  Allison's strength area reflected is in the area of reading processing and understanding the reading process.  When given the OAA in math, Allison scored a 437, which is accelerated. Allison is reading on grade level.  When assessed using the Stanford 10 intermediate II assessment, in the area of reading comprehension, Allison received a score of 663, which is also the grade level equivalent of 7.7.  In the area of spelling, Allison received a score of 681, which is a grade equivalent of 9.9.  In the area of math, Allison scored a 661,which is a grade equivalent of 7.2  I am not writing this to brag, OK, maybe just a little bit of bragging, but this shows me that Allison is not letting her hearing loss stop her.  She never uses her hearing loss as an excuse, she pushes through. She is one tough little girl.

I go next week for Jared's IEP meeting and I am expecting the same. My children are hard workers and when given a challenge they rise to the occasion.

Tuesday, July 2, 2013

On a side note.....

The aqua bags for the cochlear implants really work!  Allison went swimming this afternoon with one on and she could hear in the pool.  The only downside......with her thick hair she had a hard time keeping it on her head.  I have sent a note to her audiologist about getting a Earbandit, hopefully that will help keep the bag in place.

Sunday, June 30, 2013

CI Mapping

I took Allison for a CI checkup and let me tell you, it was wonderful.  I use to dread these appointments, I just didn't want to hear any bad news, especially after having her right ear done and Allison not progressing with it.  There was many times when I thought we had put her through a major surgery for nothing, she would never hear with the right implant and we would have to be happy with the gain she had made with the left.  But I was wrong, very wrong!  According to the testing this past week......her right side is actually doing better then the left.

At 20 dB she is hearing 100% word recognition( right ear) vs 88% ( left ear)

She is hearing 15-25 dB across the board.

We don't have to go back for 1 year!!  Life is good, life is normal.  YAY!!!

Thursday, February 21, 2013

What Cochlear Implants Can Do

I will not write much about this video, I will let Allison speak for herself, because that is what she can do because of Cochlear Implants.

Allison's Ohio Hero Wax Museum
Allison as Alyson Stoner-Hollywood Actress.

Wednesday, February 13, 2013

I though it would get easier

Yes, that is what I thought....get Jared and Allison through the auditory oral preschool program, get them mainstreamed into regular school and life would settle down.  I knew that we would still have trips to the audiologist for hearing aide checks and mappings, I knew I would be taking them to the doctor each year for their check-ups and to the dentist every six months, but I could deal with it, that is what happens when you have kids, you become their own personal taxi service, running them here and there, braces for Jared and Allison, eye doctor appointments for Allison to deal with that pesky eye muscle that is weak because of her being born prematurely, but I can handle it after all, I am super mom!
Yesterday made me want to turn in my cape.  I took Jared to the eye doctor because at his yearly check-up they checked his eyes and told me that he had gone from 20/15 to 20/40 in one year, so I made the call, got the appointment and told Jared that he would most likely be getting glasses.  Come to find out, he does not need glasses, he needs eye therapy.  He has what is know as Convergence Excess, in plain English..his eyes cross when he is reading and as he looks up they realign and causes things to go blurry.   So add another appointment to our already busy schedule.  Don't get me wrong, I love being a mom, I know this is what I signed up for when I had these precious gifts from God, but why can't it be simple?  Why can't we have kids that only need to go to the doctor once a year or the dentist every 6 month?  But then I am reminded that God does not give us more than we can handle, so He must think I can handle this, so I will, with a happy heart and a thankful spirit for Jared, Allison and Jordan. 

Friday, December 28, 2012

Holiday Wishes

Even if this is a few days late, we wanted to wish you all the best this holiday season.  We pray your Christmas was filled with wonderful things and that 2013 will bring peace and happiness to your family.

Friday, November 16, 2012

Who Knew??

Add this to the list of things that you learn when you have a child with a hearing loss......they can be allergic to the hearing aid mold.

Jared had oral surgery 3 weeks ago, the next day he started what we thought was an ear infection.  Because it was Saturday I had to take him to The Little Clinic in our local Krogers store.  They have him the standard pink stuff and sent us on our way.  It cleared the infection( or so we thought) for about a week or so and then it came back with a vengeance.  Jared's ear was red, itchy, his ear canal swelled and he had drainage.  A call to his ENT was in order, we have a great ENT who got us right in( even though they were scheduled out until Jan).  We saw him yesterday and let me just say.....YUCK!  I will not gross you all out( in case some of you are eating as you read this) with all the details.  The first thought was the oral surgery, they had to go up into his palate to get the extra tooth out and it messed up the eustachian tubes, but after the doctor looked in his other ear and noticed the same redness he decided that Jared was allergic to the hearing aid mold.  His left ear was not nearly as bad as the right, but it was heading that way.  So he is on another antibiotic and ear drops( oh joy!) for 10 days.  We head to the audiologist next week to get a new set of ear molds made.  Hopefully we can put a rush on them because of his allergy.